I have been really bad at keeping this blog and Austin’s Facebook page updated lately! I tend to post more on my personal FB page (www.facebook.com/jordanmrocha). Anyways, this summer has been pretty up & down with Austin’s health. He had two unscheduled sick visits, the first one for, well, I don’t even remember and the last one on July 31st was for bad tonsillitis and a little trip to the ER for dehydration. On August 14, Austin had his GI barium study which typically takes 3-4 hours for a normal person to complete. We were informed that with Austin’s CF, it could take all day, WHICH IT DID. It was funny because even the lead Doctor said that he had never had a CF patient literally take ALL DAY for a barium study.
We got the call this week with all the findings from the x-rays. Basically, it showed Austin does have moderate reflux problems (even with all the antacid he takes daily) and EVERYTHING in his digestive system is just REALLY slow, even pretty slow for someone with CF. We started Austin on Erythromycin, a common antibiotic that can also be used to help with digestive motility. He takes 0.8 mL 3x a day with meals. He’s only been on it for 24 hours, so we haven’t noticed any real difference yet, but we will re-evaluate everything at his next CF clinic appointment and GI appointment on September 12, which also happens to be the same day as the SF Giants CF Awareness Night game vs the Dodgers.
Anyways, we are hoping Austin stays healthy and that we can get back to CF clinic appointments once every 3 months (I still can’t believe he’s been to UCSF 6 times in the past 3 months)!!!